Essay --

Hutchinson-Gilford Progeria Syndrome Progeria or HGPS is a rare and fatal genic condition characterized by an appearance of accelerated aging in children. This sickness affects approximately 1 in 4-8 million newborns with an estimated 200-250 children living with Progeria worldwide. It affects both sexes equally and all races. Children who are born with Progeria may not exhibit symptoms until the first of all year of life often characterized by growth failure, loss of corpse fat and hair, aged-looking skin and stiffness of joints. As children get older both(prenominal) of the many conditions they suffer from are osteoporosis, generalized atherosclerosis, cardiovascular disease and stroke. many to all children modify by Progeria die of atherosclerosis at an second-rate age of thirteen (Proc Natl Acad Sci U S A, 2012) ( The Progeria Handbook A take away for Families and wellness get by Providers of Children with Progeria, Chapter 3, 2010.)A student with Progeria would qual ify as an OHI down the stairs IDEA because they would have limited strength due to their small summit and bone afflictions. Vitality and/or alertness would also be affected because many students dont have enough stamina for a full school day without rests. Students are also at a greater risk for heart complications and other wellness emergencies that may take proper monitoring throughout the school day by a caretaker. every(prenominal) of these and many more issues are due to their chronic health problems which adversely affect the pupils educational performance (Parent data Network, 2008) (Proc Natl Acad Sci U S A, 2012) ( The Progeria Handbook A Guide for Families and Health Care Providers of Children with Progeria, Chapter 3, 2010) ( The Progeria Handbook A Guide for Families and Health Care Pr... ...gns of stroke, heart failure, or what to do in the case of a seizure. This information will be invaluable in the case of an emergency. In addition, students with Progeria may be on many medications, the school nurse as well as other staff need be aware of this and their possible side effects. All of this and much of the information above need to be included in the childs IHCP. Although this disease is rare its not unachievable to be faced with a child whom is afflicted with proper erect and staff communications the child can have a authoritative and accomplished schooling experience (Ihcp - individualized, ) (Individual health care, ) ( The Progeria Handbook A Guide for Families and Health Care Providers of Children with Progeria, Chapter 3, 2010) ( The Progeria Handbook A Guide for Families and Health Care Providers of Children with Progeria, Chapter 16, 2010.)